Summary
When Morghan Kubena was less than a week old, doctors told her parents, Faye Kaufman and Mark Kubena, not to get too attached. She wasn't going to survive a rare chromosome anomaly called trisomy 18. Her parents were given a do-not-resuscitate order, which they declined to sign.
Kaufman, from Houston, tells the story a decade later as she watches her husband and daughter walk hand-in-hand down the hall outside a special clinic at Primary Children's Medical Center. The two look just like each other, father slightly supporting his daughter as she moves on skinny little legs down the hall, a smile on her face visible behind the pacifier she likes to suck.See the full content of this document
Extract
Children with Trisomy
They have come, along with more than two dozen other families from around the country, to the annual gathering of SOFT -- Support Organization for Trisomy 18, 13 and Related Disorders. Each year, they convene for group session...
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